Mallie's Friends Research Legacy
Welcome
Mallie has Osteogenesis Imperfecta (OI -- aka Brittle Bone Disease). In her short life, she has suffered over thirty fractures, including a life threatening skull fracture and four rodding surgeries. Though the ultimate long-term goal is a cure, we need to help her now. We can not afford to wait 5 yrs, 10 yrs or even longer for groundbreaking research to emerge that could benefit Mallie today. There is an extreme sense of urgency for more research as Mallie, only eight years old, is in her prime growth years. The creation of the Mallie's Friends Research Legacy will speed the course of research in the OI community. Mallie's Friends are people who embrace her struggle through their generous, tax-deductible financial donations.
Mallie kicks off research...
April 13th, 2010 Alfred I. duPont Hospital for Children launched two research studies aimed at advancing the study of OI nationwide. Joined by family, friends, the OI Foundation and several medical professionals from duPont, Mallie helped with the kickoff of these two major studies. more...
Mallie's Friends milestone...
July 1st, 2010 marks the first of two reseach fellowships to be named in Mallie's honor. Mallie's Friends have raised over $85,000, qualifying for the first $55,000 fellowship. Stay tuned for research details and a reception to celebrate our success. With just $25,000 needed to reach the second $55,000, our dream is right around the corner. more...