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Mallie is a SUPER STAR!Check out the new Public Service Announcement (PSA) that features Mallie! The video was shot in the Summer of 2011 at Mallie's home and her swim club.
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Welcome
Mallie has Osteogenesis Imperfecta (OI -- aka Brittle Bone Disease). In her short life, she has suffered nearly forty fractures, including a life threatening skull fracture and four rodding surgeries. Though the ultimate long-term goal is a cure, we need to help her now. We can not afford to wait 5 yrs, 10 yrs or even longer for groundbreaking research to emerge that could benefit Mallie today. There is an extreme sense of urgency for more research as Mallie, now ten years old, is in her prime growth years. The creation of the Mallie's Friends Research Legacy will speed the course of research in the OI community. Mallie's Friends are people who embrace her struggle through their generous, tax-deductible financial donations.
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Mallie's Friends celebrate major research milestone...
November 11th, 2010 marked the celebration of the announcement to launch the first of two $55,000 Research Fellowships. These reseach fellowships, launching in the Spring of 2011, will be named in Mallie's honor. Mallie's Friends have raised over $97,000 during the past three years. With just $13,000 needed to reach the second $55,000, our dream is right around the corner. more...
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Mallie kicks off research...
April 13th, 2010 Alfred I. duPont Hospital for Children launched two research studies aimed at advancing the study of OI nationwide. Joined by family, friends, the OI Foundation and several medical professionals from duPont, Mallie helped with the kickoff of these two major studies. more...
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